News

Nationwide Implementation of SCID Newborn Screening Ends Postcode Lottery

Posted By AusPIPS,
Jun 25 2024
At only 15 months of age, Severe Combined Immune Deficiency (SCID) took the life of Javeria’s first son, Zakariya. Due to being undiagnosed for 13 months and receiving his 12-month vaccinations...

Vale Vicki Modell, co-founder of the Jeffrey Modell Foundation

Posted By AusPIPS,
Dec 18 2023
AusPIPS extends its deepest sympathies to the Jeffrey Modell Foundation on the loss of co-founder, Vicki Modell in December 2023. Vicki made significant contributions to improving outcomes for people...

AusPIPS and IDFA Rare Disease Day Webinar 2023

Posted By AusPIPS,
Feb 27 2023
·       AusPIPS proudly partnerned with Immune Deficiencies Foundation Australia to present a joint webinar for Rare Diseases Day on 27 February 2023. The webinar on COVID-19...

AusPIPS Hosts Functional Genomics Webinar

Posted By AusPIPS,
Nov 17 2022
 On 16 November 2022 AusPIPS hosted an informative webinar on functional genomics. The webinar explored what functional genomics are? What information they give us? How it can aid in patient...

AusPIPS Forum COVID-19 update: Where Are We? What have we learnt? and What's Next?

Posted By ,
May 30 2022

About Immunoglobulin (Ig) Brochure Launch

Posted By ,
Apr 25 2022
AusPIPS, in collaboration with IDFA, IDFNZ, Myasthenia Alliance Australia and Myeloma Australia has developed a patient-centred brochure explaining the uses of...

Rare Disease Day 2022: Raising awareness for Primary Immunodeficiencies

Posted By Emily Edwards,
Feb 28 2022
AusPIPS vice president Emily Edwards, a primary immunodeficiency (PID) researcher at Monash University's Central Clinical School (CCS) recently took part in the CCS Community and Researcher...

Advice from our Medical and Scientific Advisory Panel

Posted By ,
Jan 06 2022
Advice from our Medical and Scientific Advisory Panel https://www.auspips.org.au/medical-and-scientific-advisory-panel

AusPIPS presents "PIDs: More than just a single disease"

Posted By AusPIPS,
Aug 17 2021
Register for FREE at: https://auspips2021.eventbrite.com.au

AusPIPS Current Projects

Posted By AusPIPS,
Aug 16 2021
Learn a bit about AusPIPS mission to advocate for patients with Primary Immunodeficiency, and the projects we are currently undertaking to fulfill this. https://youtu.be/BZZQFUy2zA8